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LHON Connect Zoom Event Leaders
Please meet current volunteer leaders of LHON Connect Zoom events. Select any name to open a window on this page where you can read their bio and inspiration for leading an LHON Connect Zoom event.
If there is a specific individual you would like to contact, please send an email to connect@lhon.org.
LHON Connect Zoom Event Leaders
Demographic-Based Events
Affected Teens, Affected Young Adults
Jessica Loomer
Affected Teens, Affected Young Adults
Xavier Marsh
Affected Women
Nancy Holmes
Dads of
LHON-Affected
Jim Tolve
Dads of
LHON-Affected
Tony Wright
LHON Sisterhood
Scarlet Keolanui
Moms of
LHON-Affected
Hope Gelbach
Moms of
LHON-Affected
Rashell Lewis
Onset at 60+
Howard Sumner
Spouses/Partners
of LHON-Affected
Justin Keenan
Spouses/Partners of LHON-Affected
Jerrie Lore
Symptoms or Mutation-Based Events
3460 Mutation
Patrick Doolittle
Charles Bonnet Syndrome
Paul Lore
LHON-MS
Marci Belk
LHON Plus
Josie Kozack
Topic-Based Events
Assistive Technology
Sara Nappi
LHON Live!
Jessica Loomer
Navigating Education
Courtney Dignan
Navigating Employment
Zak Turner
Parenting with LHON
Maria Johnson
Parenting with LHON
Chris Lawton
US Region-Based Events
Northeast
John Knox
Northeast
Howard Sumner
Northeast
Jim Tolve
Southeast
Brian Haas
Southeast
Jessica Knight
Midwest
Jennifer Malecha
South Central
Donna Basse
West
Bob Banks
West
Patrick Doolittle
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