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Hello and thank you for engaging with LHON Collective!

You've indicated you are a person with an LHON variant, without vision loss (LHON Carrier). We'd like to ask additional questions to better engage with you.

Answer as many or as few of the questions as comfortable and Submit when finished.

If you prefer, you can work with an LHON representative in a live format (video/phone call).

 

Use our scheduling app to schedule time or email: connect@lhon.org

CONTACT INFO

LHON SPECIFIC INFO

Choose non-vision symptoms

ADDITIONAL INFO

CLINICAL TRIALS OR STUDIES

Select Yes if you have participated in an LHON clinical trial.
Select Yes if you have participated in an LHON study.

PRESENTATIONS OR TALKS

Thanks for submitting!

Would you be willing to present in the future concerning LHON?

LHON Collective collects information as a way to further our mission to improve the lives of persons affected by LHON Collective through support, education, and research. It is the goal and intent of LHON Collective to protect your privacy. Review our privacy policy to learn what information we collect, how we use it, how that information is protected, and what you should do if you would like to request or update your information.

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