This website should be considered general information only and should not be considered medical guidance or professional advice.  Always direct any questions concerning your personal health to your doctor or another appropriate health care professional




The 2020 LHON Conference Will Be Fun and Informative!

The 2020 LHON Conference will take place in Phoenix.


The event begins Thursday evening, June 25, with a Mixer Reception with LHON and Mito Families.  


Friday June 26 will be filled with sessions about Mitochondrial Disease, Research, Clinical Trials and LHON sessions.


Friday evening includes a Reception and Banquet with all the Mito researchers, Mito families, and LHON families.


Saturday June 27 will be a full day of LHON sessions.


The Early Bird price of $115 is available until May 31.  It includes the Thursday Mixer Reception, Continental Breakfast, Lunch and Breaks, and Friday's Banquet.


If you can only join us for one day, there's an Early Bird price of $60 for sessions and meals on the selected day; the Banquet is not included.  Saturday will be more focused on LHON, so if you can only get to Phoenix for one day, that's your best choice.  

Conference Registration

There is a private Facebook group limited to people who have registered for the LHON Conference, so please register as soon as possible so you can begin networking with other attendees.  Click the link below to register:

LHON Conference Registration



Fundraising Ideas and Travel Scholarship Opportunity

If travel costs and registration fees prohibit you from attending the LHON Conference, consider fundraising to cover the costs and/or applying for a scholarship.  Ideas and suggestions used by others are at the link below:
Fundraising Tips for Symposium Travel

Information about the Scholarship Opportunity and a link to the Application Form are at the link below.  Note that Scholarship Applications must be submitted by April 15.

Scholarship Information and Application Form


Hotel Information 

The event takes place at the JW Marriott Phoenix Desert Ridge Resort.  The UMDF negotiated a Conference Rate for a block of rooms during the LHON/UMDF Conference, but those rooms will sell out quickly.  If you're even just thinking of attending the LHON Conference, it's a great idea to book your room now at the Conference Rate, rather than risk needing to pay a higher price, or not being able to get a room at the resort.   

LHON Conference Hotel Information and Registration

Videos from Past LHON Conferences
Videos from prior Conferences are located here:
LHON Conference Videos