This website should be considered general information only and should not be considered medical guidance or professional advice.  Always direct any questions concerning your personal health to your doctor or another appropriate health care professional



Notice about the Coronavirus (COVID-19)

The LHON Conference takes place in conjunction with the UMDF's Symposium.  On March 16, the UMDF sent the following announcement: "The health and safety of our UMDF family is of utmost concern to us and it is important for all of us to exercise caution during this time. We continue to monitor guidance offered by the WHO and CDC and are closely following recommendations related to COVID-19. As such, we continue to plan for the #MitoMed20 conference and are additionally actively exploring technology that will allow us to provide key information virtually."

The 2020 LHON Conference is a great way to connect with others in the LHON Community.  Just like in years past, the 2020 Conference in Phoenix, Arizona will be a fun and informative way to learn more about living with this condition.

Preliminary Details

  • Thursday evening, June 25, there will be a mixer reception for all LHON and Mito Families.  

  • Friday, June 26 will be filled with sessions about mitochondrial disease, research, clinical trials and LHON.  Friday evening will also include a reception and banquet with all the Mitochondrial researchers and families, and LHON families.

  • Saturday, June 27 will be a full day of LHON sessions.  For those who can stay for the evening, there will be an optional, casual LHON get-together/dinner (additional cost).


Besides all of the planned conference sessions, one of the best parts of attending is meeting and spending time with others in the LHON community.  Socializing is an integral part of these conferences, and one that many attendees look forward to each year.  There will be many opportunities for networking -- before, during and after the scheduled sessions.  



The Early Bird price of $115 per person is available until May 31.  It includes the Thursday Mixer Reception, Continental Breakfast, Lunch and Breaks, and Friday's Banquet.  


If you can only join us for one day, there's an Early Bird price of $60 per person for all sessions and meals on the selected day.  The Friday evening Banquet ($75 per person), however, is not included in the one day rate.  Saturday will be more focused on LHON, so if you can only get to Phoenix for one day, attending on Saturday is your best choice.  

Conference Registration

There is a private Facebook group limited to people who have registered for the LHON Conference, so please register as soon as possible so you can begin networking with other attendees.  Click this link to register:

LHON Conference Registration


Fundraising Ideas and Travel Scholarship Opportunity

If travel costs and registration fees prohibit you from attending the LHON Conference, consider fundraising to cover the costs and/or applying for a scholarship, which would cover all or part of your registration fee, and reimburse your travel costs, up to a limited amount.  Ideas and suggestions used by others for fundraising are at this link:
Fundraising Tips for Symposium Travel

Information about the Scholarship Opportunity and a link to the Application Form are at the link below.  Note that Scholarship Applications must be submitted by April 15.

Scholarship Information and Application Form

Hotel Information 

The event takes place at the JW Marriott Phoenix Desert Ridge Resort.  The UMDF negotiated a Conference Rate for a block of rooms during the LHON/UMDF Conference, but those rooms will sell out quickly.  If you're considering attending the LHON Conference, it's a great idea to book your room now at the Conference Rate, rather than risk needing to pay a higher price, or not being able to get a room at the resort.   

LHON Conference Hotel Information and Registration

Past LHON Conferences
Videos from sessions at prior Conferences are located here:
LHON Conference Videos