Leber's Hereditary Optic Neuropathy causes sudden, severe loss of central vision
Adjusting to LHON
Losing central vision is scary. Figuring out what to do when it happens is confusing, and there are many issues to address all at once.
This site was created by a family affected by LHON. By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others.
The video below provides an overview about life with LHON
LHON Facebook Group
To connect with people whose lives have been impacted by LHON, join our large and active Facebook group by clicking on the icon to the right. Over 3,000 people share information about living with LHON, including those affected, carriers and loved ones.