This website should be considered general information only and should not be considered medical guidance or professional advice.  Always direct any questions concerning your personal health to your doctor or another appropriate health care professional

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  Leber's Hereditary Optic Neuropathy causes sudden, severe loss of central vision 

Adjusting to LHON

Losing central vision is scary.  Figuring out what to do when it happens is confusing, and there are many issues to address all at once.  


This site was created by a family affected by LHON.  By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others.  

LHON Video

The video below provides an overview about life with LHON



LHON Facebook Group


To connect with people whose lives have been impacted by LHON, join our large and active Facebook group by clicking on the icon to the right.  Over 3,000 people share information about living with LHON, including those affected, carriers and loved ones.