LHON Social Media Groups
LHON is rare, so each individual affected tends to feel isolated and struggles to find the information they need to adjust to their sudden vision loss. LHON Facebook groups connect people around the world, sharing important experiences and empowering them with the information they need to move forward.
There is a private global Facebook group with over 6,000 people around the world who are affected by LHON, carriers, sighted supporters, and others interested in LHON. It’s the best place to share information, ask questions, and be involved with the global LHON community - just click the Facebook logo below to join the conversation. There are also many smaller Facebook groups that enhance connections based on demographics, symptoms, or mutation, interests, and location.
The LHON Awareness page on Instagram highlights LHON-specific events and topics.
Demographic-Based Facebook Groups
Symptoms or Mutation-Based Facebook Groups
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Topic-Based Facebook Groups
US State or Region-specific Facebook Groups
