Leber’s Hereditary Optic Neuropathy causes sudden, severe loss of central vision

Adjusting to LHON

Losing central vision is scary.  Figuring out what to do when it happens is confusing, and there are many issues to address all at once. 

This site was created by a family affected by LHON.  By sharing what we learned as we struggled to cope with LHON, we hope to help make the adjustment process smoother for others. 

LHON Video

The video below provides an overview about life with LHON.


LHON Facebook Group

To connect with these and other families whose lives have been impacted, join our large and active Facebook group by clicking on the icon to the right.