Leber’s Hereditary Optic Neuropathy causes sudden, severe loss of central vision

Adjusting to LHON


Losing central vision is scary.  Figuring out what to do when it happens is confusing, and there are many issues to address all at once. 


This site was created by a family affected by LHON.  By sharing what we learned as we struggled to cope with LHON, we hope to help make the adjustment process smoother for others. 



Born with a Bomb - Suddenly Blind from Leber’s Hereditary Optic Neuropathy


A collection of 12 stories of people affected by LHON are told in this book by Valerie Rudisill.  The book is available from Amazon.com, Kobobooks.com and other online bookstores:


http://www.amazon.com/Suddenly-Blind-Lebers-Hereditary-Neuropathy/dp/1477295852/ref=sr_1_1?ie=UTF8&qid=1363147183&sr=8-1&keywords=born+with+a+bomb


http://www.kobobooks.com/ebook/Born-Bomb-Suddenly-Blind-Lebers/book-ty7uRhXyTUSFzaD5DY94mw/page1.html?s=WUJBjafyZ023AE-gaKq8ig&r=1